Thursday, August 25, 2011
Hurricane Irene Heading our Way
We started our week with a earthquake in Virginia. We are now awaiting a powerful hurricane that will travel up the east coast. We had 14 inches of snow last winter. All of these are not common for our region. We see snow but not large amounts. We have effects of hurricanes but not evacuations. Earthquakes are unheard of. We are as ready as we can get. Preparing for the worst and hoping/praying for the best. Be safe.
Saturday, August 20, 2011
August 2011
Where did the summer go? It has been sooooooooo extremely hot and the air quality poor due to the dismal Swamp fires.We have been indoors way to much. We have not even used our grill since May. Looking forward to some cooler temperatures so we can clean out the shed and get rid of some of the clutter around here. Our plan is to get our home in repair so that we can move in two years. If The Lord sees fit we would like to move to Summerville, SC to be near family.
Our son has started Martial Arts and still likes it after three weeks. It is a Christian program where they memorize scripture and it teaches character. His instructor has taken a job out of the area so we will meet the new one on Monday. He is not good with changes. I hope they will hit it off. If not we have another option to take the class at a different location.
We will be home schooling again this year. We have not found a school that meets his needs. We have not been on the special diet but need to do this gradually again so that he will not feel deprived or different. He has intestinal issues and we see a different Gastrointestinal specialist this month.
We still have not received any definitive diagnosis for my husband. The muscle biopsy was negative. They have stopped some of his medications and vitamin supplements. He had high levels of B6.
I am still hoarse after many months. I am sure the poor air quality has contributed. I am assuming it is the Sjgroens, medications and acid reflux. The endoscopy test revealed a hernia that was stretched during the test. Actually the acid reflux has been worse since they repaired it...
My step daughter and grandaughters health have improved. They are doing a lot better as this has lifted a great burden from my heart.
I would ask for prayer for a 4 year old name Sawyer who is in the hospital with kidney failure. Pray for a miracle. His family home schools as well.
Hope you are all enjoying your summer.
.
Our son has started Martial Arts and still likes it after three weeks. It is a Christian program where they memorize scripture and it teaches character. His instructor has taken a job out of the area so we will meet the new one on Monday. He is not good with changes. I hope they will hit it off. If not we have another option to take the class at a different location.
We will be home schooling again this year. We have not found a school that meets his needs. We have not been on the special diet but need to do this gradually again so that he will not feel deprived or different. He has intestinal issues and we see a different Gastrointestinal specialist this month.
We still have not received any definitive diagnosis for my husband. The muscle biopsy was negative. They have stopped some of his medications and vitamin supplements. He had high levels of B6.
I am still hoarse after many months. I am sure the poor air quality has contributed. I am assuming it is the Sjgroens, medications and acid reflux. The endoscopy test revealed a hernia that was stretched during the test. Actually the acid reflux has been worse since they repaired it...
My step daughter and grandaughters health have improved. They are doing a lot better as this has lifted a great burden from my heart.
I would ask for prayer for a 4 year old name Sawyer who is in the hospital with kidney failure. Pray for a miracle. His family home schools as well.
Hope you are all enjoying your summer.
.
Saturday, June 18, 2011
June has been a challenge.
We have been bombarded with medical appointments and co pays this month. Therapy is always twice a week. My husband has had numerous appointments with specialist and Friday an outpatient muscle biopsy. We also squeezed in two days of westcock-johnson testing for home school. Needless to say we are all exhausted and tired of appointments.
The good news is my son did really well after not making any effort with his school work. He scored way above levels on English, 8th -10th on parts of the test. He was in 6th grade. We just have to work with writing and sentences. He also went up a level in Math which was only made possible by a patient tester, prayer and the amazing calculator! He has always been behind in math, yet he was getting A's in public school with special accommodations. He just doesn't get Math!!!
My husband is healing from the biopsy. He still has numerous test before we find out any results. He is resting and in good spirits. We are having a laid back weekend before starting another week of appointments... I am thankful for health insurance just wish it covered more.
Looking for a friend or mentor to do things with my son this summer with good character. We had to do an increase in his medication a few days before testing. He was very manic. Obviously, he was stressed about the testing.
We are also expecting another grandchild. My oldest stepson told us this week that they are 16 weeks pregnant. Praying for them and that he will get a great job.
A lot on our plate this month but God never gives us more than we can handle.
The good news is my son did really well after not making any effort with his school work. He scored way above levels on English, 8th -10th on parts of the test. He was in 6th grade. We just have to work with writing and sentences. He also went up a level in Math which was only made possible by a patient tester, prayer and the amazing calculator! He has always been behind in math, yet he was getting A's in public school with special accommodations. He just doesn't get Math!!!
My husband is healing from the biopsy. He still has numerous test before we find out any results. He is resting and in good spirits. We are having a laid back weekend before starting another week of appointments... I am thankful for health insurance just wish it covered more.
Looking for a friend or mentor to do things with my son this summer with good character. We had to do an increase in his medication a few days before testing. He was very manic. Obviously, he was stressed about the testing.
We are also expecting another grandchild. My oldest stepson told us this week that they are 16 weeks pregnant. Praying for them and that he will get a great job.
A lot on our plate this month but God never gives us more than we can handle.
Friday, May 20, 2011
Let's Step Back
Stepping back on medication for us is being off ADHD medication. Today we are starting Detox supplements for our son. He has never responded well to any of many medications. All of which have side effects such as weight gain, loss of appetite, eating non stop, craving sweets, constipation, ect...
Our hope that the Amino-D-Tox and Milk Thistle by Design for Life, will cleanse his system which will enable him to respond to medications as needed to make his quality of life better.. This was ordered by his mental health physician for 30 days.
So far he is louder and more hyped, which is normal for him w/o a ADHD med. He is able to sleep with the clonodine which is helping all of our moods.
This is the next step of our journey, one that was missed because of his lack of cooperation. We found Dr. Charles Parker at corepsychblog who has taken a real interest in him. He is working on his total health his bowel issues and brain issues.
We were told by our developmental pediatrician that Aspergers was the best diagnosis at age 5 but a psychiatrist would come up with 12 different labels. Since that time he was right, he has been given many labels. He had early intervention with many hours of individual, group, speech, OT and an IEP through 3rd grade. At that time we decided that an individual education plan should be supplemented individually. That is why we home school. He can learn where he is on different levels. We are getting ready for the testing required by the state. Has he progressed, yes but will a test show this?
Our hope that the Amino-D-Tox and Milk Thistle by Design for Life, will cleanse his system which will enable him to respond to medications as needed to make his quality of life better.. This was ordered by his mental health physician for 30 days.
So far he is louder and more hyped, which is normal for him w/o a ADHD med. He is able to sleep with the clonodine which is helping all of our moods.
This is the next step of our journey, one that was missed because of his lack of cooperation. We found Dr. Charles Parker at corepsychblog who has taken a real interest in him. He is working on his total health his bowel issues and brain issues.
We were told by our developmental pediatrician that Aspergers was the best diagnosis at age 5 but a psychiatrist would come up with 12 different labels. Since that time he was right, he has been given many labels. He had early intervention with many hours of individual, group, speech, OT and an IEP through 3rd grade. At that time we decided that an individual education plan should be supplemented individually. That is why we home school. He can learn where he is on different levels. We are getting ready for the testing required by the state. Has he progressed, yes but will a test show this?
Wednesday, May 18, 2011
Sleep,,,, Heavenly Peace...
If you do not have a sleep issue in your house then you are LUCKY and will probably find this boring. First of all my husband has 2 sleep disorders. If he doesn't get a good nights sleep, with a sleep aid and his breathing machine then coping becomes next to impossible.
My child has never sleep through the night until we added a sleep aid at age 5. He seems to be on the night shift if not medicated. About 6 weeks ago we tried a different ADHD medication. We had to stop the clonidine. We'll what can I say but we have all been rather cranky...Clonidine was added back, Intuniv stopped. Miracle, he fell asleep with his head on the clean linens in the laundry basket thinking he was gonna stay up again. I got him to bed and he slept 12 hours, then 8 the next night. We are w/o ADHD meds. but WE HAD SLEEP!!!! Without proper sleep he is more prone to rage/tantrums and true irritability.
I too rely on a sleep aid, I have a compromised immune system, I Must Sleep... Coping is a whole lot easier with a good night of SLEEP...Every body benefits.
My child has never sleep through the night until we added a sleep aid at age 5. He seems to be on the night shift if not medicated. About 6 weeks ago we tried a different ADHD medication. We had to stop the clonidine. We'll what can I say but we have all been rather cranky...Clonidine was added back, Intuniv stopped. Miracle, he fell asleep with his head on the clean linens in the laundry basket thinking he was gonna stay up again. I got him to bed and he slept 12 hours, then 8 the next night. We are w/o ADHD meds. but WE HAD SLEEP!!!! Without proper sleep he is more prone to rage/tantrums and true irritability.
I too rely on a sleep aid, I have a compromised immune system, I Must Sleep... Coping is a whole lot easier with a good night of SLEEP...Every body benefits.
Friday, May 13, 2011
Medication Challenges
Today I am ready to throw out the Neurotin, not working for fibromyalgia pain... Health insurance would not pay for cymbalta so I must try this. Give me back my anti depressant at least I could cope better with the pain and my child!!!
My child is not explosive today nor is he cursing non stop. Which is something that therapy has not helped. It's not like he lives in a home where we speak it. He has his days and nights reversed since his last medication change...He has an appointment Monday so I am working on my list of what we need to change. He does not respond well to medications. We did IGG testing which shows he has food sensitivities to almost everything. We have tried a Gluten,wheat, dairy, egg, cashew, yogurt, yeast, free diet. He is very uncooperative. If it says gluten free, he won't try it. He is a picky eater. He only eats it if it looks right. Yes he is spoiled and over protected, but he also has sensory integration issues. When I grew up I ate what was on my plate, I can't imagine telling my mom that I was not going to eat her crappy food. This is part of his mood disorder, I am not to take it personal but it is!!!,
What does that mean, how do you not take it personal when you spend your life loving your child, taking him to doctors, therapist, OT, speech, group,home schooling, because he can't handle school, playing with him because he can't keep a friend and you are the target of his anger and aggression.
Yes, bring back the anti depressant, not coping as well as I'd hoped. Puberty is kicking in and I can't see things improving anytime soon. Ii will never give up on my sweet little boy who can be the sweetest child in the world until his switch goes off...Prayers and hugs for my sweet child xoxo Mom
My child is not explosive today nor is he cursing non stop. Which is something that therapy has not helped. It's not like he lives in a home where we speak it. He has his days and nights reversed since his last medication change...He has an appointment Monday so I am working on my list of what we need to change. He does not respond well to medications. We did IGG testing which shows he has food sensitivities to almost everything. We have tried a Gluten,wheat, dairy, egg, cashew, yogurt, yeast, free diet. He is very uncooperative. If it says gluten free, he won't try it. He is a picky eater. He only eats it if it looks right. Yes he is spoiled and over protected, but he also has sensory integration issues. When I grew up I ate what was on my plate, I can't imagine telling my mom that I was not going to eat her crappy food. This is part of his mood disorder, I am not to take it personal but it is!!!,
What does that mean, how do you not take it personal when you spend your life loving your child, taking him to doctors, therapist, OT, speech, group,home schooling, because he can't handle school, playing with him because he can't keep a friend and you are the target of his anger and aggression.
Yes, bring back the anti depressant, not coping as well as I'd hoped. Puberty is kicking in and I can't see things improving anytime soon. Ii will never give up on my sweet little boy who can be the sweetest child in the world until his switch goes off...Prayers and hugs for my sweet child xoxo Mom
Wednesday, May 4, 2011
Lupus Awareness Month
May is Lupus Awareness Month. I was diagnosed in 1990. Today I set up a face book page for our local chapter. Join us at :Lupus EVA chapter
www.lupus.org
Let's Band Together for Lupus Go to the LFA National site for all current information, trial drug studies and ways you can help
I will spend another day telling My Lupus Story. Today I have an explosive child to deal with. Which is another blog we won't get into today.
www.lupus.org
Let's Band Together for Lupus Go to the LFA National site for all current information, trial drug studies and ways you can help
I will spend another day telling My Lupus Story. Today I have an explosive child to deal with. Which is another blog we won't get into today.
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